Going Home
When you get home, you should be able to resume the life you led before the operation.
Here is some helpful advice:
Obtaining Supplies:
Upon leaving the hospital, your WOC Nurse will provide you with information on how and where to get your supplies. Your doctor will write a prescription for your ostomy product supplier, as well as a list of the supplies you will need. Be careful not to store your pouches in direct sunlight or near heat. This may cause the barrier which attaches the pouching system to your skin to break down. If stored in cool temperatures, let the barrier return to room temperature before using.
Diet
Eating a well-balanced diet that can include your favorite foods is important to your health. Be aware that some foods cause an odor in urine including:
- asparagus
- fish
- onions
- garlic
These foods can still be eaten. However, you may become aware of an unusual odor. You should drink at least 8 glasses of fluid each day, unless you have to limit your fluids due to a medical problem. Be sure to drink extra fluids when exercising or sweating.
Urinary Tract Infections (UTIs)
UTIs can occur with a urostomy. Signs and symptoms of a urinary tract infection include:
- increased amount of mucus in the urine
- cloudy and strong-smelling urine
- fever
- confusion
- loss of appetite
- back pain
- nausea and vomiting
- blood in urine
If you experience these symptoms, contact your physician.
Medication:
Some medications may change the color and odor of your urine. Your physician or pharmacist can advise you about this.
Bathing and Showering:
You may choose to bathe or shower with your pouch on or off. If you shower with your pouch off, choose a soap that is oil- and residue-free. These types of soaps will not interfere with the adhesion of the barrier.
Exercise and Sports:
Exercise is good for everyone, and this includes people with an ileostomy. Once your strength returns, you can enjoy exercise and activities as you did before the operation. Check with your doctor before exercising or playing contact sports. Special small pouches can be used when swimming and playing sports if desired.
Intimacy:
You should speak with your surgeon regarding any effects your surgery may have on sexual function. Your ostomy does not limit or prohibit sexual activity. Intimacy can play an important role as you take steps to resume the life you had before surgery.
Note: there are special products and accessory choices available for intimate moments.
Travel
Travel should not be restricted due to your ileostomy. Remember to pack all of your supplies for the journey, and make sure you have more than enough supplies for the duration of your trip. Keep your supplies where you can easily get to them. If you are flying, take supplies in a “carryon” bag in case you become separated from your checked luggage.
Supply Checklist :
- pouches
- barriers - if using a two-piece system
- soft paper towels
- wipes,
- strip paste,
- powder or other accessories
- scissors (if using a cut-to-fit system)
- stoma guide
- plastic bag (to discard pouch, if necessary)
Continuing Care
After surgery, it’s important that you begin enjoying life as quickly as possible. Your doctor or WOC Nurse is available to help with any problems or questions. Organizations are also in place to provide information and support for you and your family. Ask your WOC Nurse for information about local groups and chapters.